Building the Electronic Data Infrastructure to Improve Patient Outcomes: CER Project Profiles

EDM Forum, AcademyHealth

Abstract

This report provides a background and profiles of 12 research projects funded through the American Recovery and Reinvestment Act of 2009 (ARRA) focused on building the electronic clinical data infrastructure for comparative effectiveness research (CER) and patient centered outcomes research (PCOR). An introduction to infrastructure investments in CER and PCOR is provided, as well as descriptions of the major grant programs supporting this work. The profiles describe the specific aims and elements for each project, including the infrastructure and research aims, outcomes of interest, priority populations and conditions of focus, and key partners involved in the projects. Supporting material, including a glossary of acronyms and key terms, is included in a series of appendices. Opportunities to get engaged in discussions about the research and potential future uses of the infrastructure are provided.