Submission Type



Biomedical Research, Health Services Research, Comparative Effectiveness Research, Quality Improvement, Informatics, Data Display


Human beings possess well-documented strengths in pattern recognition and higher-order reasoning. This allows individuals to interpret complex data sets in ways that remain difficult to reproduce using computers. Given these capabilities, it is important to present data in a manner that supports such human-computer interaction, and is pertinent to patient-centered research, where investigators frequently need to analyze multidimensional data sets derived from a variety of heterogeneous sources. An overarching domain of innovation focusing on user experience (UX), which can include areas such as human factors, workflow evaluation, human-computer interaction, and data visualization, has the potential to support the aforementioned needs. However, a review of available data concerning the state of UX research as it relates to patient centered research demonstrates a concerning low level of investment and knowledge generation in this area. In response to these concerns, this report explores potential explanations for these trends and then presents a set of recommendations to advance UX innovation in the context of patient centered research. Ultimately, the hope is to catalyze a community-wide dialogue concerning future directions for these important areas.

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