Project Snapshots are community-curated resources submitted and maintained by project or network staff. All research or QI projects using electronic health data (from EHRs, EMRs, or electronically collected patient reported outcomes (ePRO)) are invited.

Submission Criteria:
All submitted projects must demonstrate that a primary source of data for the project or network is electronic clinical information – generally, data initially generated from electronic health records (EHR) for clinical purposes, which is then transformed and linked to other databases to conduct a research and/or QI project. Completed forms that adhere to the submission guidelines will be reviewed by EDM Forum staff for clarity, spelling/grammar, and consistency. EDM Forum staff will follow up with authors via email to ensure the provenance of the submitted material is authentic and confirm publication. Other than grammatical checks, all Snapshots will be posted as submitted. It is the responsibility of the submitter to ensure that the content and descriptions are complete and accurate.

Completed forms that meet the submission criteria stated above (i.e., focus on linking electronic clinical data across healthcare settings; data types, etc.) will be published. EDM Forum staff will review the content for clarity, spelling/grammar, and consistency; however, it is the responsibility of the submitter to ensure that the content and descriptions are complete and accurate to allow for rapid publishing of the Project Snapshot. Staff will follow up with authors via email to ensure the provenance of the submitted material is authentic.

Submit a Snapshot


For more information, contact Courtney Segal at courtney.segal@academyhealth.org

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Submissions from 2013

A mobile health infrastructure to support underserved patients with chronic conditions, Henry Fischer

Cardiovascular Risk Reduction Learning Community (CRRLC), Karl E. Hammermeister MD

Kaiser Permanente Autoimmune Disease Registry, Lisa Herrinton

Expansion Research Capability to Study Comparative Effectiveness in Complex Patients, Youjie Huang

PHIS+: Augmenting the Pediatric Health Information System with Clinical Data, Ron Keren

COPD Outcomes-based Network for Clinical Effectiveness and Research Translation - Comparative Effectiveness Research (CONCERT-CER), Jerry A. Krishnan

New Mexico Race and Ethnicity Data Project (NMREDP), Michael Landen Dr

Building CER Capacity: Aligning CRN, CMS, and State Resources to Map Cancer Care – Research on the effectiveness of advanced cancer treatments (REACT), Debra P. Ritzwoller and Jane C. Weeks

Moffitt Cancer Center’s Health and Research Informatics Platform, Dana E. Rollison

Clinically enhanced multi-purpose administrative dataset for comparative effectiveness research in the State of Florida, Hamisu M. Salihu

Health measurement using an audio computer-assisted self interview system to support the patient-centered medical home, William Trick

Northwest Portland Area Indian Health Board (NPAIHB) Improving Data and Enhancing Access Project (IDEA - NW), Victoria Warren-Mears and Tom Weiser

Improving Reporting of Race, Ethnicity, and Language in California, David S. Zingmond