The ImproveCareNow Network Participation and Data Use Agreement defines the common guidelines and principles that network members agree to when they join the ImproveCareNow collaborative. It describes the data that will be collected, how it will be shared, the purposes for which it will be used, etc. This document has been essential for defining the legal and regulatory framework under which the network operates, making centers much more comfortable about contributing their data to the ImproveCareNow registry.
Legal and regulatory concerns, Data sharing approaches and considerations, Sustainability
Type of Governance Resource
Healthcare Setting(s) in which Data were Collected
Academic medical center(s), Community health center(s), Inpatient facility(ies), Primary care or ambulatory clinic(s), Specialty clinic(s)
Electronic Health/Medical Records (EHR or EMR), Patient-Reported Outcomes
Generalizability to Other Settings
An agreement of this type is essential for any network or registry that wishes to share data among participants for research, QI or clinical support.
At the time of submission to the EDM Forum Governance Toolkit (August 2013), ImproveCareNow was comprised of more than 50 care centers, ranging from small private practices to large academic health centers, including many of the nation’s top children’s hospitals (https://improvecarenow.org/about/who-we-are).
Geographic scope type
Gates, Joan; Neff, Chris; and Colletti, Richard, "ImproveCareNow Network Participation and Data Use Agreement" (2013). Governance Toolkit. Paper 4.
Acknowledgement of Funders
This work was funded in part by R01HS20024 from the Agency of Healthcare Research and Quality.