Resources that discuss approaches to analyzing prospective data from electronic clinical data systems for CER, PCOR, and QI are welcome.

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Submissions from 2016

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Appreciating the Nuance of Daily Symptom Variation to Individualize Patient Care, Jeremy Adler, Shehzad A. Saeed, Ian S. Eslick, Lloyd Provost, Peter A. Margolis, and Heather C. Kaplan

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The Multi-Morbidity Index: A Tool for Assessing the Prognosis of Patients from History of Illness, Farrokh Alemi; Cari R. Levy; and Raya E. Kheirbek MD, FACP

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Applying Sequential Analytic Methods to Self-Reported Information to Anticipate Care Needs, Elizabeth A. Bayliss, J. David Powers, Jennifer L. Ellis, Jennifer Barrow, Mary Jo Strobel, and Arne Beck

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Preparing Nursing Home Data from Multiple Sites for Clinical Research – A Case Study Using Observational Health Data Sciences and Informatics, Richard D. Boyce PhD; Steven M. Handler MD, PhD; Jordan F. Karp MD; Subashan Perera PhD; and Charles F. Reynolds III, MD

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v3NLP Framework: Tools to Build Applications for Extracting Concepts from Clinical Text, Guy Divita; Marjorie Carter MS; Le-Thuy Tran PhD; Doug Redd MS; Qing T. Zeng PhD; Scott Duvall PhD; Matthew H. Samore MD, PhD; and Adi V. Gundlapalli MD, PhD, MS

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Using a Data Quality Framework to Clean Data Extracted from the Electronic Health Record: A Case Study., Oliwier Dziadkowiec, Tiffany Callahan, Mustafa Ozkaynak, Blaine Reeder, and John Welton

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An Automated Method for Identifying Individuals with a Lung Nodule Can Be Feasibly Implemented Across Health Systems, Farhood Farjah, Scott Halgrim, Diana S.M. Buist, Michael K. Gould, Steven B. Zeliadt, Elizabeth T. Loggers, and David S. Carrell

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A General Framework for Considering Selection Bias in EHR-Based Studies: What Data are Observed and Why?, Sebastien Haneuse and Michael Daniels

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Comparative Effectiveness Research Using Observational Data: Active Comparators to Emulate Target Trials with Inactive Comparators, Anders Huitfeldt, Miguel A. Hernan, Mette Kalager, and James M. Robins

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Introduction of an Area Deprivation Index Measuring Patient Socio-economic Status in an Integrated Health System: Implications for Population Health, Andrew J. Knighton, Lucy Savitz, Tom Belnap, Brad Stephenson, and James VanDerslice

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A Validation Study of Administrative Claims Data to Measure Ovarian Cancer Recurrence and Secondary Debulking Surgery, Jennifer Livaudais-Toman, Natalia Egorova, Rebeca Franco, Monica Prasad-Hayes, Elizabeth A. Howell, Juan Wisnivesky, and Nina A. Bickell

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Can Electronic Health Records Be Used for Population Health Surveillance? Validating Population Health Metrics Against Established Survey Data, Katharine H. McVeigh PhD, MPH; Remle Newton-Dame MPH; Pui Ying Chan MPH; Lorna E. Thorpe PhD; Lauren Schreibstein MS; Kathleen S. Tatem; Claudia Chernov MPH; Elizabeth Lurie-Moroni; and Sharon E. Perlman MPH

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A Synthesis of Current Surveillance Planning Methods for the Sequential Monitoring of Drug and Vaccine Adverse Effects Using Electronic Health Care Data, Jennifer C. Nelson, Robert Wellman, Onchee Yu, Andrea J. Cook, Judith C. Maro, Rita Ouellet-Hellstrom, Denise Boudreau, James S. Floyd, Susan R. Heckbert, Simone Pinheiro, Marsha Reichman, and Azadeh Shoaibi

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Observational Studies of Drug Safety in Multi-Database Studies: Methodological Challenges and Opportunities, Robert W. Platt, Colin R. Dormuth, Dan Chateau, and Kristian Filion

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Using Machine Learning and Natural Language Processing Algorithms to Automate the Evaluation of Clinical Decision Support in Electronic Medical Record Systems, Donald A. Szlosek and Jonathan M. Ferretti

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What Causes Care Coordination Problems? A Case for Microanalysis, Wayne Zachary, Russell Charles Maulitz, and Drew A. Zachary

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Guiding Principles for Data Architecture to Support the Pathways Community HUB Model, Bernard P. Zeigler, Sarah Redding, Brenda A. Leath, Ernest L. Carter, and Cynthia Russell

Submissions from 2015

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DQ Codeathon Travel Reimbursement Form, AcademyHealth

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Development of an Algorithm to Classify Colonoscopy Indication from Coded Health Care Data, Kenneth F. Adams, Eric A. Johnson, Jessica Chubak, Aruna Kamineni, Chyke A. Doubeni, Diana S.M. Buist, Andrew E. Williams, Sheila Weinmann, V. Paul Doria-Rose, and Carolyn M. Rutter

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Applied Use of Composite Quality Measures for EHR-enabled Practices, Aurora O. Amoah, Sam Amirfar, Sheryl L. Silfen, Jesse Singer, and Jason J. Wang

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Style Guide: An Interdisciplinary Communication Tool to Support the Process of Generating Tailored Infographics From Electronic Health Data Using EnTICE3, Adriana Arcia, Mark Velez, and Suzanne Bakken

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The Challenges of Data Quality Evaluation in a Joint Data Warehouse, Charles J. Bae MD, Sandra Griffith PhD, Youran Fan PhD, Cheryl Dunphy RN, Nicolas Thompson MS, John Urchek, Alandra Parchman MHA, and Irene L. Katzan MD MS

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CHCO_dq.sql, Data Quality Collaborative

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Data Quality CDM Tutorial Transcript, Data Quality Collaborative

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Data Quality Codeathon Travel and Booking Information, Data Quality Collaborative

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DQC Code-A-Thon Orientation Session, Data Quality Collaborative

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DQ CDM Dataset, Data Quality Collaborative

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DQ CDM Tutorial, Data Quality Collaborative

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DQ Code-A-Thon 2015 Orientation Packet, Data Quality Collaborative

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MS_DQ.sql, Data Quality Collaborative

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PCORNET_DQ.sql, Data Quality Collaborative

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PHIS_DQ.sql, Data Quality Collaborative

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SQL File Instructions, Data Quality Collaborative

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SYNPUF_DQ.sql, Data Quality Collaborative

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EDM Forum Bibliography (September, 2015): Peer‐Reviewed Literature Using Electronic Health Data for System Improvement, EDM Forum

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EDM Forum Review 2015, EDM Forum

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eGEMs Instructions for Authors, EDM Forum

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PRO Toolkit Submission Instructions, EDM Forum

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The Pioneering Role of the Vaccine Safety Datalink Project (VSD) to Advance Collaborative Research and Distributed Data Networks, Kevin R. Fahey

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Development and Implementation of ExPLORE Clinical Practice, a Web-accessible Comparative Outcomes Tool for California Hospitals and Physicians, Peter D. McNair, Jade Fang, Stephan Schwarzwaelder, and Terri Jackson

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Back to the Bedside: Developing a Bedside Aid for Concussion and Brain Injury Decisions in the Emergency Department, Edward R. Melnick, Kevin Lopez, Erik P. Hess, Fuad Abujarad, Cynthia A. Brandt, Richard N. Shiffman, and Lori A. Post

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Improving Clinical Workflow in Ambulatory Care: Implemented Recommendations in an Innovation Prototype for the Veteran’s Health Administration, Emily S. Patterson, Svetlana Z. Lowry, Mala Ramaiah, Michael C. Gibbons, David Brick, Robert Calco, Greg Matton, Anne Miller, Ellen Makar, and Jorge A. Ferrer

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Adapting Practice-Based Intervention Research to Electronic Environments: Opportunities and Complexities at Two Institutions, Christopher J. Stille, Steven A. Lockhart, Julie A. Maertens, Christi A. Madden, and Paul M. Darden

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Population Health Measurement: Applying Performance Measurement Concepts in Population Health Settings, Michael Stoto

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Linking Electronic Health Records to Better Understand Breast Cancer Patient Pathways Within and Between Two Health Systems, Caroline A. Thompson, Allison W. Kurian, and Harold S. Luft

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Analytic Challenges Arising from the STOP CRC Trial: Pragmatic Solutions for Pragmatic Problems, William M. Vollmer, Beverly B. Green, and Gloria D. Coronado

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Development and Applications of an Outcomes Assessment Framework for Care Management Programs in Learning Health Systems, Lin Wang, Kara Kuntz-Melcavage, Christopher Forrest, Yanyan Lu, Leslie Piet, Kathy Evans, Maria Uriyo Uriyo, Melissa Sherry, Regina Richardson, Michelle Hawkins, and Donna Neale

Submissions from 2014

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Using Electronic Health Data for Research and Quality Improvement: A Summary of Innovations, Achievements, and Lessons Learned from the Electronic Data Methods (EDM) Forum, 2010–2013, EDM Forum

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Medicaid Medical Directors Quality Improvement Studies: A Case Study of Evolving Methods for a Research Network, Gerry Fairbrother, Tara Trudnak, and Griffith Katherine

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The Keys to Evaluative Methods for Quality Improvement Interventions: Understanding and Analyzing Context, Don Goldmann, Kathryn McDonald, and Gareth Parry

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Patient Report Improves Posthospital Discharge Event Capture in Total Joint Replacement: A Novel Approach to Capturing All Posthospital Event Data, Leslie Harrold, Scott Pascal, Courtland Lewis, Regis O'Keefe, Vincent Pellegrini, Jeroan Allison, David Ayers, and Patricia Franklin

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Estimating Screening Test Utilization Using Electronic Health Records Data, Rebecca A. Hubbard, Jessica Chubak, and Carolyn M. Rutter

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How the Provenance of Electronic Health Record Data Matters for Research: A Case Example Using System Mapping, Karin E. Johnson, Aruna Kamineni, Sharon Fuller, Danielle Olmstead, and Karen J. Wernli

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Validity of Medical Chart Weights and Heights for Obese Pregnant Women, Michael C. Leo PhD, Nangel M. Lindberg PhD, Kimberly K. Vesco MD, and Victor J. Stevens PhD

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Developing Electronic Data Methods Infrastructure to Participate in Collaborative Research Networks, Elisa L. Priest DrPH, MPH; Christopher Klekar MPH; Gabriela Cantu MPH; Candice Berryman MBA; Gina Garinger MBA; Lauren Hall MPH; Maria Kouznetsova PhD, MPH; Rustam Kudyakov MD, MPH; and Andrew Masica MD, MSCI

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Analytical Methods for Learning Health Systems, Michael A. Stoto, Erin Holve, Lucy Savitz, Neil S. Fleming, Elisa L. Priest, and Brian S. Mittman

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Automating Data Abstraction in a Quality Improvement Platform for Surgical and Interventional Procedures, Meliha Yetisgen, Prescott Klassen, and Peter Tarczy-Hornoch

Submissions from 2013

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DQC Dimensions Table Draft 1: An inventory of potential clinical data quality dimensions

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DQC White Paper Draft 1: A consensus-based data quality reporting framework for observational healthcare data

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Validation of Diagnostic and Procedural Codes for Identification of Acute Cardiovascular Events in US Veterans with Rheumatoid Arthritis, Lisa A. Davis, Alyse Mann, Grant W. Cannon, Ted R. Mikuls, Andreas M. Reimold, and Liron Caplan

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EDM Forum Phase I Publications and Products, EDM Forum

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Addressing Variations in Data Quality to Facilitate Multi-Institution Comparative Effectiveness Research, Michael G. Kahn, Jeffrey Brown, Daniella Meeker, Patrick Ryan, and Lisa M. Schilling

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Methods for Estimating Kidney Disease Stage Transition Probabilities Using Electronic Medical Records, Lola Luo, Dylan Small, Walter F. Stewart, and Jason A. Roy

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Effect Identification in Comparative Effectiveness Research, Michael Oakes

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Developing a Fully Integrated Medical Transport Record to Support Comparative Effectiveness Research for Patients Undergoing Medical Transport, Andrew P. Reimer and Elizabeth Madigan

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Collecting and Using Patient-Reported Outcomes (PRO) for Comparative Effectiveness Research (CER) and Patient-Centered Outcomes Research (PCOR): Challenges and Opportunities, Courtney Segal, Erin Holve, and Raj Sabharwal

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Medical Home Characteristics and Asthma Control: A Prospective, Observational Cohort Study Protocol, Marion R. Sills, Bethany M. Kwan, Barbara P. Yawn, Brian C. Sauer, Diane L. Fairclough, Monica J. Federico, Elizabeth Juarez-Colunga, and Lisa M. Schilling

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New Analytical Methods for a Learning Healthcare System: A Message from the Guest Editor, Michael A. Stoto

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Analyzing Patient Care Records Like a Trial to Develop New Knowledge about Clinical Practice, Mike Stoto and Charles Bailey

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Estimating Causal Effects in Observational Studies Using Electronic Health Data: Challenges and (some) Solutions, Elizabeth A. Stuart, Eva DuGoff, Michael Abrams, David Salkever, and Donald Steinwachs

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Strategies for Handling Missing Data in Electronic Health Record Derived Data, Brian J. Wells, Amy S. Nowacki, Kevin Chagin, and Michael W. Kattan

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Comparisons Among Health Behavior Surveys: Implications for the Design of Informatics Infrastructures that Support Comparative Effectiveness Research, Sunmoo Yoon, Adam Wilcox, and Suzanne Bakken

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Using Multifactorial Experiments For Comparative Effectiveness Research in Physician Practices with Electronic Health Records, Jelena Zurovac Ph.D, M.S.; Lorenzo Moreno Ph.D., M.Sc.; Jesse Crosson Ph.D.; Randall Brown Ph.D.; and Robert Schmitz Ph.D.