The purpose of the PROactive Toolkit is to foster open discussion and share resources related to the implementation of PROs in health care. The toolkit includes best practices, and a description of common challenges and recommendations. These tools are intended to assist clinicians, administrators and researchers who are interested in including PROs in their work. Areas of the toolkit address: how to make the case for PROs, how to include their collection in routine workflow, considerations for measure selection, what types of information technology may support PRO collection, and how to involve patients.
The toolkit is intended as a living document. Accordingly, we strongly encourage you to submit materials that you feel will be helpful to others. Submissions must include information about the primary author and any co-authors, a title, an abstract, a list of ten key words, and the electronic format of your file. More detailed resource criteria can be found here.
EDM Forum staff will review submitted content for clarity, spelling/grammar, and consistency. It is the responsibility of the contributor(s) to ensure that the content and descriptions are complete and accurate to allow for rapid publishing of submissions. Staff will follow up with all contributors via the email address provided in the submission form to ensure the provenance of the submitted material is authentic.
Interested in submitting? Read the submission criteria.
Guidance Documents/Discussion Guides
User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice, International Society for Quality of Life Research, Neil Aaronson, Thomas Elliott, Joanne Greenhalgh, Michele Halyard, Rachel Hess, Deborah Miller, Bryce Reeve, Maria Santana, and Claire Snyder
Advances in Patient Reported Outcomes: The NIH PROMIS Measures, Joan E. Broderick; Esi Morgan DeWitt M.D., M.S.C.E; Nan Rothrock PhD; Paul K. Crane M.D., M.P.H; and Christopher B. Forrest M.D., Ph.D.
Collecting Patient Reported Outcomes: Lessons from the California Joint Replacement Registry, Kate E. Chenok, Stephanie Teleki, Nelson F. SooHoo, James Huddleston III, and Kevin J. Bozic
Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care, Danielle C. Lavallee, Kate E. Chenok, Rebecca M. Love, Carolyn Peterson, Erin Holve, Courtney D. Segal, and Patricia D. Franklin
Integrating Patient-Reported Measures into Routine Cancer Care: Cancer Patients’ and Clinicians’ Perceptions of Acceptability and Value, Angela Stover, Debra E. Irwin, Ronald C. Chen, Bhishamjit S. Chera, Deborah K. Mayer, Hyman B. Muss, Donald L. Rosenstein, Thomas C. Shea, William A. Wood, Jessica C. Lyons, and Bryce B. Reeve
Integrating Patient-Reported Outcomes into Spine Surgical Care through Visual Dashboards: Lessons Learned from Human-Centered Design, Andrea L. Hartzler, Shomir Chaudhuri, Brett C. Fey, David R. Flum, and Danielle C. Lavallee
Web-based Comparative Patient-reported Outcome Feedback to Support Quality Improvement and Comparative Effectiveness Research in Total Joint Replacement, Hua Zheng, Wenjun Li, Leslie Harrold, David Ayers, and Patricia D. Franklin