Resource Title

User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice

Abstract

This User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice was developed by a team of volunteers from the International Society for Quality of Life Research (ISOQOL). The purpose of this User’s Guide is to help clinicians who are interested in using patient-reported outcome (PRO) measures in their clinical practice as a tool in patient management.

The questions addressed by this User’s Guide include the following:

1. What are your goals for collecting PROs in your clinical practice and what resources are available? Which key barriers require attention?

2. Which groups of patients will you assess?

3. How do you select which questionnaire to use?

4. How often should patients complete questionnaires? Should it be tied to visits or a way to follow patients between visits?

5. How will the PROs be administered and scored?

6. What tools are available to aid in interpretation and how will scores requiring follow-up be determined?

7. When, where, how, and to whom will results be presented?

8. What will be done to respond to issues identified through the PROs?

9. How will the value of using PROs be evaluated?

For each of the questions, the User’s Guide provides the following information:

• the different options for answering each of the questions posed above,

• the resources needed to implement the various options,

• the advantages and disadvantages of the various options, and

• useful references for more information.

Use Case

Patient Care, Quality Improvement

Implementation Considerations

Measure/Instrument selection; Scoring, interpretation and display of results; Adapting workflow to support PRO collection

Resource Types

Guidance Documents/Discussion Guides

Data Collection Tools/Healthcare Settings

This is a general User's Guide, which refers to multiple approaches for data collection in various settings.

Generalizability to other settings and best practices

This is a general User's Guide, which refers to multiple approaches for data collection in various settings.

Acknowledgement of Funders

The User’s Guide to Implementing Patient-Reported Outcomes Assessment in Clinical Practice was developed by a team of volunteers from the International Society for Quality of Life Research (ISOQOL).