OVERVIEW

On October 27-28, 2011 the EDM Forum assembled a two day meeting at the Hilton Crystal City in Arlington, VA to convene members of the analytic and informatics staff from each of the research projects with one another and with external experts from diverse disciplinary perspectives to share their challenges and innovations and discuss the application of cutting-edge analytic approaches for comparative effectiveness research (CER) using ECD. While the teams had an understanding of their aims for the various CER studies, this meeting was an opportunity to foster a deeper consideration of the analytic methods and the approaches for collecting and incorporating patient-reported outcomes (PRO) into their projects.

Meeting Objectives
  • Share ideas with experts from diverse disciplinary perspectives and discuss the application of cutting-edge analytic approaches for comparative effectiveness research (CER) using electronic clinical data (ECD).
    • Day 1: Discussion focused on methods that leveraged the unique infrastructure built to support rigorous prospective research studies with electronic clinical data.
    • Day 2: Discussion focused on the collection and use of patient reported outcomes (PRO) for CER.
  • Provide an opportunity for researchers engaged in the PROSPECT, DRN, and Enhanced Registry projects to:
    • Discuss approaches to addressing current analytic challenges;
    • Identify areas for the research teams to work together to resolve issues.
  • Propose topics for papers, briefs, or collaborative analysis.

QUESTIONS?

Please contact edmforum@academyhealth.org.

The EDM Forum 2011 October Symposium was a closed meeting.

The EDM Forum is supported by the Agency for Healthcare Research and Quality (AHRQ) through the American Recovery & Reinvestment Act of 2009, Grant U13 HS19564-01.

Formal Agenda
Participant List
Schedule

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2011
Thursday, October 27th
10:00 AM

Opening Remarks

Lisa Simpson, AcademyHealth
Ned Calonge, The Colorado Trust
Jean Slutsky, Agency for Healthcare Research and Quality

Room: Rappahannock/James Room

10:00 AM - 10:15 AM

10:15 AM

Plenary Remarks

Joe Selby, Patient-Centered Outcomes Research Institute (PCORI)

Room: Rappahannock/James

10:15 AM - 11:00 AM

11:00 AM

Latest approaches for making valid inferences about cause and effect in CER studies, building on new opportunities provided by electronic clinical data

Elizabeth Stuart, Johns Hopkins Bloomberg School of Public Health
Patrick Ryan, Johnson & Johnson, Observational Medical Outcomes Partnership (OMOP)
Marshall Joffe, University of Pennsylvania, Cincinnati Pediatric Enhanced Registry

Room: Rappahannock/James

11:00 AM - 12:30 PM

1:30 PM

Assessing Validity and Quality, and Understanding Context

Michael Kahn, University of Colorado
Beth Devine, University of Washington
Jay Desai, HealthPartners Research Foundation

Room: Mt. Vernon

1:30 PM - 3:00 PM

Innovations in Analysis

Brian Sauer, University of Utah
Brian Hazlehurst, Kaiser Permanente Northwest
Jodi Segal, Johns Hopkins University
Jeremy Rassen, Harvard University (DEcIDE)

Room: Monticello

1:30 PM - 3:00 PM

Study Designs for System Level Questions in CER

Randall Brown, Mathematica, Inc.
Glen Mays, University of Kentucky
Kathleen Stevens, University of Texas, San Antonio

Room: Rappahannock/James

1:30 PM - 3:00 PM

Friday, October 28th
9:00 AM

Opening Remarks

Ned Calonge, The Colorado Trust

Room: Rappahannock/James

9:00 AM - 9:15 AM

9:15 AM

Breakout Session: Group 1

Beth Devine, University of Washington
Wilson Pace, University of Colorado, Denver
David Chang, University of California - San Diego

Room: Rappahannock/James

9:15 AM - 10:15 AM

Breakout Session: Group 2

Bernadette Boden-Albala, Columbia University
Paul Dexter, Regenstrief, Inc.

Room: Monticello

9:15 AM - 10:15 AM

10:30 AM

Discussion

Wade Aubry, University of California - San Francisco

Room: Rappahannock/James

10:30 AM - 11:30 AM